A Paradigm Shift Towards More Inclusive and Equitable Approaches to Data Access and Utilization After Community-Based Public Health Research

Abstract

Health equity remains an elusive goal, particularly in marginalized communities where disparities persist. Community-based public health research holds promise in addressing these inequities, but barriers to data access hinder its potential impact. This paper advocates for a paradigm shift towards more inclusive and equitable approaches to data access and utilization after community-based research. By implementing a research data access registry process, we can overcome existing barriers, promote transparency, and empower communities to leverage research findings for their benefit. This paper discusses the potential impact of this approach in promoting health equity, addressing health disparities, and fostering trust in minority communities. Beneficiaries include doctoral students, post-doctoral researchers, community health centers, pharmacies, and medical centers interested in accessing data from community-based public health research to create toolkits, inform evidence-based practices, and recommend better patient-reported outcomes treatment approaches.